Feb 16, 2025

Understanding Patient-Reported Outcome Measures (PROMs) and Their Role in Modern Healthcare

This article discusses the role of Patient Reported Outcome Measures in Value-Based Healthcare Systems.

Over the past decade there has been a shift in how patients are seen within the healthcare systems. The historic approach was focusing on treating a patient and then switching to the next one. In the modern day, this is not enough, we must check with the patient, how has their quality of life changed after the treatment. One of the most significant advancements in this regard is the adoption of Patient-Reported Outcome Measures (PROMs). These tools are transforming how healthcare providers assess treatment effectiveness, prioritise patient-centered care, and deliver value-based healthcare. In this article, we will explore what PROMs are, why they matter, and how they are being integrated into healthcare systems worldwide.

What is PROMs

Usually, Patient-Reported Outcome Measures (PROMs) refer to standardised surveys (in the form of questionnaires) that capture patients' perspectives on their health status, quality of life, and treatment outcomes.. Unlike traditional clinical metrics, which rely on objective measurements like blood pressure or lab results, PROMs are entirely based on the patient’s subjective experience. They cover a wide range of domains, including physical health, mental health, social functioning, and quality of life.

For example, a PROM might ask a patient with chronic pain to rate their pain intensity, describe how it affects their daily activities or their emotional well-being. PROMs are widely used in various healthcare fields, including chronic disease management, surgery, mental health, and rehabilitation. These measures help bridge the gap between clinical efficacy and patient experience, ensuring that treatment success is not only defined by biological markers but also by improvements in a patient’s overall well-being.

PROMs are not a new concept - they have been used in clinical research for decades. However, their integration into routine clinical practice is a relatively recent development, driven by the growing emphasis on patient-centered care and value-based healthcare.

Why Are PROMs Important in Clinical Practice?

1. Enhancing Patient-Centered Care

PROMs give patients a voice in their care. They shift the focus from what clinicians think is important to what patients actually experience. This alignment is critical for delivering patient-centered care, which is at the heart of modern healthcare systems. Research shows that when patients feel heard and involved in their care, they are more likely to adhere to treatment plans and achieve better outcomes (Black, 2013). This in turn means less reoperations and reduced costs of care in the long term.

2. Improving Treatment Outcomes

Studies have shown that using PROMs in clinical settings leads to better treatment outcomes. Patients who regularly report their symptoms and quality of life experience, improve communication with their healthcare teams, leading to timely interventions and better management of chronic conditions.

PROMs are a powerful tool for evaluating the effectiveness of treatments and interventions. By tracking changes in patient-reported outcomes over time, healthcare providers can assess whether a treatment is truly making a difference in the patient’s life. This is particularly important in chronic disease management, where the goal is often to improve quality of life rather than achieve a cure.

3. Improving Clinical Decision-Making

PROMs provide clinicians with valuable data that complements traditional clinical metrics. For example, a patient recovering from knee surgery might have normal imaging results but still report significant pain and mobility issues. PROMs can highlight such discrepancies, prompting clinicians to investigate further or adjust treatment plans. Studies have demonstrated that the use of PROMs in clinical practice leads to better communication between patients and providers, more personalized care, and improved health outcomes (Chen et al., 2013).

4. Driving Value-Based Healthcare

Value-based healthcare focuses on delivering the best possible outcomes for patients at the lowest cost. PROMs are a key component of this approach because they measure outcomes that matter most to patients. By incorporating PROMs into routine care, healthcare systems can identify high-value interventions, reduce waste, and allocate resources more effectively.

How PROMs Are Being Pushed Globally

The adoption of PROMs is gaining momentum worldwide, particularly in countries that prioritise value-based healthcare. Governments and healthcare organisations are recognising the potential of PROMs to improve patient outcomes, enhance care quality, and reduce costs. Let’s take a closer look at some of the initiatives driving this trend.

1. Saudi Arabia Vision 2030: Health Sector Transformation Program

In Saudi Arabia, Vision 2030 is a transformative roadmap aimed at diversifying the economy and improving the quality of life for citizens. A key pillar of this vision is the overhaul of the healthcare system to make it more patient-centered and value-driven. PROMs are playing a central role in this transformation.

Under Vision 2030, the Saudi Ministry of Health has launched several programs to integrate PROMs into routine clinical practice. For example, the Health Sector Transformation Program includes initiatives to collect and analyse patient-reported outcomes for chronic diseases like diabetes and cardiovascular conditions (Saudi Vision 2030). These efforts are helping healthcare providers deliver more personalized care and measure the impact of their interventions.

2. The UK’s NHS PROMs Program

The United Kingdom’s National Health Service (NHS) has been a pioneer in the use of PROMs. Since 2009, the NHS has mandated the collection of PROMs for certain elective procedures, such as hip and knee replacements. The data collected is used to evaluate the effectiveness of treatments, identify best practices, and inform policy decisions.

3. The US and the Shift to Value-Based Care

In the United States, the transition to value-based care has accelerated the adoption of PROMs. The Centers for Medicare & Medicaid Services (CMS) have incorporated PROMs into several payment models, including the Merit-Based Incentive Payment System (MIPS). These models reward healthcare providers for delivering high-quality, patient-centered care, with PROMs serving as a key performance indicator.

4. The European Experience

European countries are also embracing PROMs as part of their healthcare strategies. For example, Sweden has integrated PROMs into its national quality registries, which track outcomes for a wide range of conditions. Similarly, the Netherlands has developed a standardized set of PROMs for use in primary care, enabling providers to benchmark their performance and identify areas for improvement.

The Future of PROMs: Challenges and Opportunities

While the benefits of PROMs are clear, their widespread adoption is not without challenges. These include:

Data Collection and Integration: Collecting and analyzing PROMs data can be resource-intensive, particularly in resource-limited settings.

Patient Engagement: Ensuring that patients complete PROMs questionnaires accurately and consistently requires ongoing education and support.

Standardisation: The lack of standardized PROMs across different conditions and populations can make it difficult to compare outcomes.

Integration with EHRs: Ensuring seamless integration of PROMs into digital health records is crucial for efficiency.

Data Interpretation: Healthcare providers need training to interpret and act on PROMs data effectively.  

Despite these challenges, the potential of PROMs to transform healthcare is undeniable. As more countries and healthcare systems embrace value-based care, the use of PROMs is likely to become even more widespread.

Conclusion: Join the Conversation

Patient-Reported Outcome Measures (PROMs) are more than just a tool - they represent a fundamental shift in how we think about healthcare. By putting patients at the center of care, PROMs are helping to deliver better outcomes, improve quality of life, and drive value-based healthcare.

If you’re interested in learning more about PROMs or exploring how they can be integrated into your practice or healthcare system, we’d love to hear from you. Reach out to us to discuss how we can help you harness the power of PROMs to deliver truly patient-centered care.

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References

  1. Black N. Patient reported outcome measures could help transform healthcare. BMJ. 2013 Jan 28;346:f167. doi: 10.1136/bmj.f167. PMID: 23358487.
  1. Chen J, Ou L, Hollis SJ. A systematic review of the impact of routine collection of patient reported outcome measures on patients, providers and health organisations in an oncologic setting. BMC Health Serv Res. 2013 Jun 11;13:211. doi: 10.1186/1472-6963-13-211. PMID: 23758898; PMCID: PMC3700832.
  1. Saudi Vision 2030. (n.d.). National Transformation Program. Retrieved from رؤية السعودية 2030

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